Best practice cancer care is continuously informed by evidence and research on treatments and clinical outcomes. Building on Action 4.2.1 Develop an agreed national cancer data framework to improve accessibility, consistency and comprehensiveness of integrated data assets, there is an opportunity to design a national approach to performance monitoring and reporting for all providers that assess service performance on patient reported experience and patient reported outcome measures (PREMs and PROMs). Many jurisdictions, health and cancer services, and networks have designed and implemented PREMS and PROMS to varying extents. The segmented structure of the Australian health system and the cancer care system limits standardisation of experience and outcome measures, and assessment of service performance at a national level, particularly for priority population groups.

This 5-year action may include:

• co-design of a nationally consistent performance monitoring and reporting framework for cancer care services with representatives across population groups
• establishment of a governance and reporting approach for service providers to publish results from patient reported experience and patient reported outcomes
• consider establishment of national benchmarks for patient reported experience measures across providers
• support for digital platforms to capture and report on PREMS and PROMS for cancer care, which can be embedded into clinical practice and transferred to multiple health settings.

Embedding PREMs and PROMs into national performance monitoring and reporting for all public and private providers across the cancer care continuum will establish an evidence-base for service improvement, drive transparency across the sector, and improve equity of care for all priority populations. The use of PREMs and PROMs as an indicator may help address unmet needs and targeted supports, or changes to standard clinical procedures for certain priority populations.